Dear all,

I saw the parents and this little girl on breakfast TV a couple of days ago. I’m quoting from their Go-Fundme page “Our beautiful little Leni, who is just two years old and so full of love and life, has been diagnosed with an extremely rare and very severe rapidly neurodegenerative genetic condition called Sanfilippo Syndrome Type B (MPSIIIB), also known as Childhood Dementia. Life-saving treatment may be available this year, but we need to urgently raise funds for her to access this. With Leni’s condition every day matters and time is running out to save her life.”

Every time I look at this picture I see the face of one of our beautiful young granddaughters Mollie looking back at me. I can only imagine how one must feel if this was one’s child or grandchild. I’m including a link below to their Go-FundMe page. We donated what we could, if you could please consider donating and/or sharing the link below.

Leni’s Life-Saving Treatment

Thanks for reading and kind regards,

Leigh